Medical Information

Anencephaly
http://www.nlm.nih.gov/medlineplus/ency/article/001580.htm
MEDLINEplus Medical Encyclopedia; U.S. National Library of Medicine, National Institutes of Health
     Spanish - Anencefalia
     http://www.nlm.nih.gov/medlineplus/spanish/print/ency/article/001580.htm

NINDS Anecephaly Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/anencephaly_doc.htm
National Institute of Neurological Disorders and Stroke


Family Support

Dear Parent: Choices Before Termination…Making Memories to Last a Lifetime
http://www.aheartbreakingchoice.com/nancyw2.htm
A Heartbreaking Choice

To Our Family & Friends: AHC Moms Talk About What Helped and What Didn't Help After Their Losses
http://www.aheartbreakingchoice.com/dodont.html
A Heartbreaking Choice

Stillbirth, Miscarriage and Infant Death
http://www.compassionatefriends.org/Brochures/stillbirth.htm
The Compassionate Friends
     Spanish - Partos en los que los ninos nacen muertos, abortos naturals y muertes infantiles
      http://www.compassionatefriends.org/Brochures/stillbirth_miscarriage.htm


Pictures

Diagram of Anencephaly
http://asfhelp.com/ASF_files/medical_files/sketch.htm
Anencephaly Support Foundation


Resources

Resources for Parents Who Continue a Pregnancy with a Fetal Abnormality
http://mchneighborhood.ichp.edu/pacnorgg/continue.htm
Pacific Northwest Regional Genetics Group (PacNoRGG)

A Heartbreaking Choice
http://www.aheartbreakingchoice.com

SHARE Pregnancy & Infant Loss Support, Inc.
http://www.aheartbreakingchoice.com

Waiting With Love
http://www.erichad.com/wwl/

Support Group List-servs
http://groups.yahoo.com/search?query=anencephaly

Disclaimer: The inclusion of any website link (or resource accessed through a link) does not imply endorsement by Children's Hospital & Regional Medical Center or the Center for Children with Special Needs. Seek the advice of your child's health care provider before you act or rely upon any information from these resources.