Care Organizing Tools
The tools on this page are organization systems to help you keep track of important information about your child's health and care. There are two kind of systems:
1.The Care Notebook is a 3-ring binder. It contains many types of forms that families may fill in. These forms include:
-
A medication list
-
Medical provider lists 
-
Emergency information
- Appointment calendar
- Transportation plans
- School check list
- and more
It also includes plastic pages that hold business cards and several pocket dividers that hold papers. The Care Notebook is only available in English for now.
 2.The Care Organizer is another kind of organization system. It is a plastic file folder that expands. It has labeled pockets to help you organize paperwork. It does not come with forms to fill out. Sections include:
- Contacts
- Appointments
- Clinic visits
- Medication
- Therapy
- Test Results
- Resources
- School
- and more
It comes in English, Spanish, Vietnamese, Russian, Chinese and Somali.
How can these organizers help?
In caring for a child with special health needs, families may get information and paperwork from many sources. The Notebook or Organizer help organize information in a central place. Choose one based on your style of record keeping and/or how complex your child's condition is.
How Can I get a Care Notebook or Organizer ?
- Download or print the Care Notebook or individual forms (below).
- Order a Care Organizer or Notebook.
- Flyers that describe the items are also available for you to share with other families.
If you have questions about any of these files or if you would like to adapt or reprint the Care Notebook, contact Patty Centioli at patty.centioli@seattlechildrens.org.
Complete Care Notebook (Word version)
Use this version to fill out online and print or save on your computer. You can make changes to the forms as your child's care changes.
Complete Care Notebook (PDF) Use this version to print out a hard copy and then fill out.
Individual Forms-These are designed to fill out online and print or save on your computer. You can make changes as your child's care changes.
Setting Up and Using a Care Notebook
Care Notebook: A Quick Guide
List of Pages
Alphabet Soup: Acronym Index
Pages to Keep Track of Appointments and Care
Appointment Log
Diet Tracking Form
Equipment/Supplies
Growth Tracking Form
Hospital Stay Tracking Form
Lab Work/Tests/Procedures
Make-a-Calendar
Medical Bill Tracking Form
Medical/Surgical Appointments
Medications
Notes
Pages to Create a Care Summary: Abilities and Special Care Needs
Activities of Daily Living
Care Schedule
Child's Page - Now and Later
Communication
Coping/Stress Tolerance
Mobility
Nutrition
Respiratory
Rest/Sleep
Social/Play
Transitions - Looking Ahead
Pages to Create a Care Team and Resources List
Hospital Information Form
Finding Resources for Children with Special Needs
Care Planning Pages
Emergency Preparedness for Families of Children with Special Needs
Getting to Know Me
In Case of Emergency
What is the Plan?
Community Health Care/Service Providers:
Medical/Dental
Public Health
Home Care
Therapists
Early Intervention Services
School
Child Care
Respite Care
Pharmacy
Special Transportation
Family Information
Family Support Resources
Insurance/Funding Sources
Ordering Information
Families in Washington State may order one Care Notebook or one Care Organizer per child with special needs at no cost. Call Children's Resource Line and provide your name, mailing address, phone number and the item you would like to order.
Children's Resource Line
1-866-987-2500, option 3
(206) 987-2500, option 3
Or print and fax/mail this Order Form.
Or print, cut, and mail this Postcard.
Can Washington professionals order copies?
Yes, Washington professionals may order one sample copy of the Care Notebook and Care Organizer to use as tools to show parents. To order additional copies, Care Notebooks cost $10.00 each and Care Organizers cost $8.00 each. For quantity orders or questions, contact Patty Centioli at (206) 884-5735 or patty.centioli@seattlechildrens.org
What about orders outside of Washington State?
Current funding only supports the production of materials for families in Washington State. Therefore, for orders out-of-state, the Notebook and Organizer cost $20 each. Up to 5 of each Care tool may be ordered. Contact Patty Centioli for more information at (206) 884-5735 or patty.centioli@seattlechildrens.org.
Flyers
 Detailed flyer
Easy to read flyers can help non-English speaking Washington State families order the Organizer (includes English):
Spanish Flyer
Vietnamese Flyer
Russian Flyer
Last modified: 04/22/08 (c) |
