Medical Information

Breast-feeding when your baby has hypotonia, congenital heart disease or Down Syndrome
http://www.ndss.org/content.cfm?fuseaction=CommFFP.NEwArticle&article=424
National Down Syndrome Society

Clinical Info: Early Intervention and Down Syndrome
http://www.ndss.org/content.cfm?fuseaction=CommFFP.NewArticle&article=447
National Down Syndrome Society

Down Syndrome
http://www.kidshealth.org/parent/medical/genetic/down_syndrome.html
KidsHealth, Nemours Foundation
     Spanish - Síndrome de Down
     http://www.kidshealth.org/kid/en_espanol/enfermadades/down_syndrome_esp.html

Down Syndrome
http://www.nichcy.org/pubs/factshe/fs4.pdf
National Dissemination Center for Children with Disabilities (NICHCY)
     Spanish - El Síndrome de Down
     http://www.nichcy.org/pubs/spanish/spandis.asp#fs4sp

Down Syndrome: Health Issues - News and Information for Parents and Professionals http://www.ds-health.com
Dr. Len Leshin, M.D., F.A.A.P.

Health Supervision for Children with Down Syndrome
http://pediatrics.aappublications.org/cgi/reprint/107/2/442.pdf
American Academy of Pediatrics


Family Support

Welcoming Babies with Down syndrome
http://www.nas.com/downsyn/welcome.html
Down Syndrome WWW Page


Resources

National Down Syndrome Congress (NDSC)
http://www.ndsccenter.org/resources/print.asp

Washington PAVE Down Syndrome Tip sheet
http://www.washingtonpave.org/pub/tips/DownSyn.pdf

UPSIDE! Down Syndrome Society
http://www.telebyte.com/upside/upside.html

National Down Syndrome Congress Hotline (1-800-232-NDSC) or info@ndsccenter.org

Washington State Medical Home Leadership Network: Down Syndrome
http://medicalhome.org/diagnoses/dsyndrome.cfm


Down Syndrome Listservs

DOWN-SYN is a list for discussion of Down Syndrome. Members include parents, siblings, other relatives, friends, therapists, physicians, and of course people with Down Syndrome.
Instructions: Send the message, SUBSCRIBE DOWN-SYN Your Real Name to listserv@listserv.nodak.edu

Trisomy mailing list
http://trisomyonline.org
Instructions: Send an email to Tri-Family-request@freelists.org with the word SUBSCRIBE in the subject line.

UPS N DOWNS is a family discussion of Down Syndrome and other disabilities
Instructions: Send an email to listserv@home.ease.lsoft.com with SUBSCRIBE UPSNDOWNS in the body of your message.


Disclaimer: The inclusion of any website link (or resource accessed through a link) does not imply endorsement by Children's Hospital & Regional Medical Center or the Center for Children with Special Needs. Seek the advice of your child's health care provider before you act or rely upon any information from these resources.