Adolescent Transition
Adolescent Health Transition Project
A resource for adolescents with special health care needs, chronic illness or physical or developmental disabilities.
Ticket to Work: Information for Washington Teens
The Ticket to Work (TTW) is a Social Security Administration program that provides employment support services for people with disabilities who want to work. These employment support services might include vocational rehabilitation, job search assistance, job training, resume writing, job coaching, and more.
Data/Research Links
Data Resource Center (DRC) for Child and Adolescent Health
Easy to navigate national, state and regional data on child and adolescent health and children and youth with special health needs.
Developmental Disabilities
Arc of Washington
Services, resources, and programs for children with developmental disabilities.
Boyer Children's Clinic
Seattle based clinic that provides resources and events for families of children with cerebral palsy and other developmental disabilities.
Fragile X Association of Washington State
University of Washington Center on Human Development and Disability
Resources, clinical services, training and community outreach.
University of Washington Leadership Education in Neurodevelopmental and Related Disabilities (LEND)
A graduate level interdisciplinary training program that prepares professionals and graduate students for leadership roles in providing health and related services for children with neurodevelopmental disabilities and their families.
General-Children with Special Needs
Brave Kids
Help for children with chronic, life threatening illnesses and disabilities.
Children's Hospital and Regional Medical Center, Seattle, WA
Children and Adolescents with Special Health Care Needs:Knowledge Pat(MCH Library)
Resources compiled by the Maternal and Child Health (MCH) Library at Georgetown University. Offers recent, high-quality resources for health professionals and families about caring for children and adolescents with special health care needs.
Family Village
For children and adults with disabilities, their families, friends and allies. The site offers thousands of online resources in a organized, easy-to-use directory. The resource library provides information on over 300 diagnosis. Visitors can also learn about assistive technology, legal rights and legislation, special education, leisure activities and much more.
Medical Home Leadership Network
Practical and current tools, strategies, and information designed to help physicians and other health care providers in Washington State care for children, youth and families with special health care needs. Resources for parents, youth and families in understanding how to partner with their health care providers, understand their health conditions, and make informed health care decisions.
National Dissemination Center for Children with Disabilities-NICHCY
Serves as a central source of information on disabilities, IDEA (the law authorizing special education), No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.
Parenting Clinic
The University of Washington's Parenting Clinic provides programs that promote children's social competence and reduce behavior problems. Their web site provides information for teachers, therapists and parents of young children ages 4 to 8 years old.
Parent Help 123
Whether you are a parent seeking information, or a professional needing health resources. The Answers for Special Kids (ASK) Resource Line is a tool for parents and providers looking for resources and information to help children with special needs.
Puget Sound Health Alliance
Resources and tools for managing health care, researching health topics and your health care and how to talk to your doctor.
Seattle Children's Play Garden
A safe, inclusive outdoor recreation space for children with physical or mental disabilities.
Special Needs Resource Project (SNRP)
This site is designed to help you get a jump-start in your search for helpful information and resources. Their aim is to help you learn the basic skills you'll need to obtain the specific resource information, equipment, and services your child and family needs.
Washington PAVE
A parent directed organization that works with families, individuals with disabilities, professionals and community members in all walks of life and with all types of disabilities. Pave provides information, training and support for individuals with disabilities, parents and professionals.
Nutrition
Nutrition for Children with Special Health Care Needs in Washington State
Information on nutrition services for children with special health care needs and their families in Washington State. Includes: available services, resources, publications, and links to related Web sites
Parent, Family and Sibling Support
Family Voices
A national network of families and friends, that advocate for health care services that are family-centered, community-based, comprehensive, coordinated and culturally competent for all children and youth with special health care needs.
Fathers Network
Offers resources and support for fathers and families raising children with special health care needs and developmental disabilities.
Parent to Parent Washington State
We provide emotional support and information to families of children with special needs and/or disabilities.
Sibling Support Project
A national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
Pediatric Palliative Care
Pediatric Palliative Care Consulting Service
Pediatric palliative care is designed for children who have a major illness that may limit the length of their life.
Regional Links
Stone Soup Group-Alaska
A statewide collaboration located in Anchorage, Alaska, aimed at improving services
for families who have children with developmental disabilities.
Special Education
The Center for Health and Health Care in Schools-Special Education Related Services
Comprehensive listing of resources and services for special education.
Statewide Parent Training and Information Center – Provides training, resources, and support for parents in Washington State whose children have special learning needs, individuals with disabilities, professionals – anyone interested in people with disabilities. Staff and volunteers work with you one-to-one or provide workshops on various aspects of obtaining appropriate services in the public school system.
Washington State Superintendent of Public Instruction-Special Education
Resources and information for students of special education and their families. Subjects of interest include: "What is an Ombudsman?", publications regarding special education and listing of State Needs projects.
Washington State Links
Resources and tools for managing health care, researching health topics and your health care and how to talk to your doctor.
